HCI Research in Sensitive Settings:

Lessons Learned from Technology Design and Ethical Challenges in Dementia


Are you interested in designing and developing technologies for sensitive settings?

Do you want to learn how to engage vulnerable users in design research? 


In this course, we will share concrete guidelines for HCI research in sensitive settings based on our research experience in dementia. We share how these lessons learned apply in sensitive settings regarding how designing for and with people with dementia has general implications for design and computing. First, we will provide real-world insights on designing technologies in sensitive settings by analyzing example cases from academia and industry. Next, we instruct designers and researchers in practical ethical conduct with stakeholders through hands-on exercises, such as facilitating informed consent and modifying common co-design activities for sensitive contexts.


You can subscribe to the course during your CHI2023 registration

For more info or questions, please contact Maarten Houben: m.houben1@tue.nl
how to design and develop technologies for sensitive settings?
Benefits
During this course, the attendees will learn:
- concrete insights and knowledge on how to design and develop technologies for sensitive settings
- how technology is integrated into everyday care settings and maintained beyond the course of the research project
- to balance asymmetric power relations in co-design settings
- to act in emotionally difficult situations by managing expectations and goals

Content
This course will consist of one online session before the conference and one in-person session hosted at the conference venue.

Online Session: Lessons Learned from Research in Dementia (Wednesday 12-Apr: 13:00 – 14:15 CEST)
During the online session, we will provide a general overview of approaches in technology design in the context of dementia. We will give attendees multiple insights into co-design practices with different groups of stakeholders in sensitive contexts and what challenges you might encounter. The attendees can expect concrete inspiration for approaches to apply for themselves, insights from literature or other domains regarding the inclusion of different target groups, and insights into the ethical challenges of this type of work.

In-Person Session: Challenges and Opportunities for Research in Sensitive Settings (Thursday 27-Apr)
During the in-person session, we will elaborate on how these theories, methods, and products can be transferred to other sensitive settings. The attendees will apply the lessons learned in the online session to the cases in group and relate them to their personal experience in design projects or practice. Within an informal and inclusive setting, the attendees can share and discuss their insights and receive feedback and tips for their future research plans.
how to engage vulnerable users and relevant stakeholders during design and research activities?
Instructors background

Maarten Houben is a postdoctoral researcher at the Eindhoven University of Technology in the Department of Industrial Design. His PhD research focused on the beneficial effects of everyday sounds and soundscapes in technologies for dementia. Maarten adopts a design approach for introducing and evaluating novel technologies in everyday care environments by involving key stakeholders such as people with dementia, their relatives, and care practitioners.
Minha Lee is an Assistant Professor at Eindhoven University of Technology at the Department of Industrial Design. Her research interests include moral conflicts and emotions in relation to technology; she conducts mixed, qualitative, and quantitative research in a multidisciplinary manner. Minha Lee received her doctoral degree from the University of Eindhoven's Human-Technology Interaction and Philosophy and Ethics groups in 2021 on interactional morality.
Sarah Foley is a Lecturer in Applied Psychology and Human-Computer Interaction. Her research interests lie at the intersection of aging, care, and technology. She employs co-design and qualitative methods in her research. She completed her PhD in 2019, which examined the role of design and technology in dementia care. Current research interests include care, online communities, and qualitative methodology. 
Kellie Morrissey is a Lecturer at the University of Limerick’s School of Design. A psychologist by training, her main interests are in the intersection of health and politics in designing digital objects in sensitive settings. Her main research areas are participatory design approaches to engaging people with dementia in meaningful activities, with a secondary interest in design to improve women’s access to appropriate and high-quality health and reproductive services.
Rens Brankaert is an Assistant Professor of Active and Healthy Ageing at Eindhoven University of Technology, Department of Industrial Design. He is also a Professor Health Innovations & Technology at Fontys University of Applied Sciences, School of Allied Health Professions. He co-leads the (TU/e) Expertise Center for Dementia & Technology. Rens has a specific interest in designing ‘Warm Technology’ for people living with dementia. He approaches this from a person-centered perspective and is interested in the impact of design in care practice.
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